CCPGM Medically Complex Program helps child with special healthcare needs. 

By Beth Burton, CCPGM Pediatric Program Manager

When Janis Patterson, Primary Care Manager for CCPGM’s Medically Complex Program for Children (MCC) on the Pediatric Team, began care managing her pediatric patient with special healthcare needs, she faced several hurdles.

The child, who we’ll call M.N., was refusing to go to school and the family was struggling to provide daily care, including making transportation appointments for medical provider visits.  The parents speak limited English, are wary of outsider help, have difficulty arranging transportation and they have limited understanding of their child’s medical needs.

Establishing trust between patients and care managers is the cornerstone of generating effective outcomes for patients. Jan works closely with this family and continues to meet them where they are on each step in their healthcare journey. Donning her detective hat and seeking strengths of her patient’s family, Jan recognized capacity of M.N’s 18-year-old sibling and mobilized her to serve as a point person to arrange transportation for medical appointments. She empowers the family to work together and learn necessary skills to support M.N.’s ongoing needs. In only six months’ time, M.N. is now participating more fully in life activities; she is leading a fuller life and her family are more active participants in her care.

Understanding that play is the developmental task for children, Jan recently helped the family apply and receive a scholarship for M.N. to attend summer camp. In this picture, M.N. is experiencing the joy of childhood, laughing and playing with her counselors and fellow campers!  Jan has helped combine a unique understanding of pediatrics with perseverance and out of the box thinking to help facilitate patient/family self-management. For this family of a child with special needs, Jan’s care management supports them to draw on their innate abilities to care for their child and learn essential skills to improve the quality of life and long-term outcomes for their child.

 

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